THE PARENTS of an Otley boy with an ultra-rare health condition will hold a fundraising ball this Spring.

Katy and Simon Brown had cause to celebrate in 2015 when, after a long campaign, health chiefs announced a deal that meant their son, Sam, could keep receiving a life-changing drug treatment.

Sam, a pupil at The Whartons Primary School, is one of only about 100 people in England with Morquio Syndrome - which means he is missing an enzyme that breaks down large sugar molecules.

The disease causes serious health problems, including joint and skeletal abnormalities - but the Vimizim drug which Sam is continuing to receive can slow its progression.

The campaign to get the treatment available to all Morquio sufferers through the NHS was spearheaded by local MP Greg Mulholland (Lib Dem, Leeds North West) and the MPS Society.

Sam's parents decided this year to 'give something back' as a token of thanks - so they have organised a Spring Ball at Harrogate's Crown Hotel on Saturday, April 29 to raise money for the charity.

Katy said: "This will raise money for the MPS Society, the charity that supports us and other families affected by MPS conditions, one of which is Morquio Syndrome.

"It promises to be a fab night and a great way to celebrate Tour De Yorkshire weekend too."

The black tie/lounge suit event, featuring a three course dinner and dance plus charity raffle and auction, will run from 7pm to midnight, with the bar open until 12.30am.

Tickets, which include a welcoming drink, cost £40 and can be booked by sending an e-mail to mpsspringball@gmail.com .